Blog

~Signing Do Not Resuscitate Papers~

~Signing Do Not Resuscitate~ Alone in my room one day  I quietly printed and signed a Do Not Resuscitate (DNR) document. I put it in a box that contained our families important documents. As I laid it on the birth certificates and  adoption decrees, I realized I had waited to long to write a series of goodbye  […] Read more…

Arguing The Losses

Arguing The Losses We have been here before. The tears. Quiet tension. Both of us trying to make sense of what to do next. Our weaknesses shining through, reminding us that the chaos is still with us. Even though we have given our best through these 2 1/2 years it isn’t enough. We aren’t arguing […] Read more…

This is a glimpse at life with chronic pain…

This is the task, it is pretty simple and quick now days. I want to get in my car and run a quick errand. I grab my purse, slip into my sandals, grab my sunglass and I’m off! This small task once consumed a gargantuan amount of time and effort. For over a  decade seemingly […] Read more…

Struggling for Normalcy …

lyme voice struggling for normalcy image

I sat last night at an end of the year banquet for Dereck and the R4 Robotics team. They have achieved so much in so many areas. They had a very moving slide show that encompassed the last  four years of the team. Even though Dereck is younger than many of the core team members. […] Read more…

Lyme and Children

About Lyme and Children Your Lyme Voice

September 15, 2014 (The following article was written for Lymedisease.org) The CDC says that Lyme disease is most common among boys aged 5-19. This age group is affected at three times the average rate of all other age groups. Around 25% of all reported cases are children. Children with Lyme disease have special issues. Since […] Read more…

Live like you are “ALIVE”

Live LIke You Are Alive All About Lyme Voice

July 18, 2014 Tim McGraw sings a song called Live like you were dying. It is a great song about loving more, exploring areas in your life that you had previously put on the back burner, and utilizing your last months of life. I have thought over that song many times in the last several […] Read more…

8 months post-treatment: Independent Living

8 months post treatment independent living lyme voice

April 22, 2014 It is amazing what you can get done when you aren’t dying. I can accomplish more by 9am, than I was able to do in an entire day. And I functioned that way for years and years, every step and motion cost me precious energy that I did not have. Now as […] Read more…

6 months post-treatment for Lyme disease at Shea Medical

Lyme Voice 6 Months Post Treatment for Lyme

April 21, 2014 I have my comfy yoga pants on in anxious anticipation of spending the evening with my kids at Gravity park! And yes, I do plan on jumping. I don’t know for how long, but I’m jumping. I’ve been on the trampoline in our yard more recently and haven’t had any issues or […] Read more…

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