(Battling Chronic Lyme During High School)

Josey Buzby was just starting high school when ongoing health issues and ANXIETY forced her to do homebound (online) schooling. 

Key Takeaways:

  • “I wanted the normalcy of seeing my friends every day.” 
  • I wanted to be in school. But I couldn’t stay awake, let alone remember anything. 
  • The fluorescent lights hurt my eyes.
  • The short term memory loss and not being able to speak the right words (word loss) and the right time made school almost impossible. (4:00)
  • Lyme turned my life upside-down. 
  • Anxiety and “weird pains” were my first symptoms.
  • “I know something is wrong”
  • After being fired by my physician who didn’t believe I had Lyme. I was sent on an incredibly weird, awful but exciting journey to find out what was wrong. (7:00)
  • My moods were out of control. (The anti-hulk medication)
  • My mom really fought to figure out what was going on.
  • “I did a 180-degree turn as a human.”
  • “Lyme is horrible. It’s this thing you can’t see. You can’t see Lyme.”
  • Even if I don’t get better, I can still watch people grow. (17:00)
  • I never thought I could be a functional member of society.
  • You can laugh or you can cry, when situations are out of your control. We choose to laugh.
  • Comedy was a way to cope with what was going on.
  • You give people in your life “select information” because you don’t want to freak them out. 
  • My friends had to make a choice to “stay with me” and I had to make a choice to “let them stay” in my life. (I didn’t want people to see me if I hadn’t showered in days)
  • We shut a lot of people out, because they don’t understand what is going on.
  • I didn’t want to know anything about Lyme disease. I didn’t want to watch the movies or read any of the books. My mom went into research mode, I didn’t want to know anything.
  • “To LIVE would be an awfully big adventure”= my survival TATTOO 

(I couldn’t get it until I was done with treatment)

  • “My Mom is the whole reason I lived.”
  • After being homebound for years. Reengaging with society was hard. I kept wondering if I could make friends again.
  • What if I can’t make friends anymore?
  • Training to be an EMT forced me to interact. 
  • You feel like you have been robbed. 
  • What would you say to other teens battling Lyme during highschool?  “I’m sorry you have no control. But you’ll get it back. Take the small wins as they come.”
  • You can be a human again!
  • It felt unreal to have normal worries. 
  • “This is what normal people do.” 
  • When you want to give up, you have to find something to look forward too.”