Lyme sucks

The Harsh Realities of Congenital Lyme – Episode #047

 Our special and anonymous guest today shines a light on the emotional side of parenting kids with congenital Lyme. Parents all over the world are waged in a battle for the lives of their kids.   Talking Points- Chronic pain Seizures Confusion Loss Educational barriers Medical poverty Fatigue Isolation Fear Rage Despair Lack Survival Disability […] Read more…

046 Parenting With Chronic Lyme Disease

Talking Points: Reconnecting with your kids in the aftermath of being in survival mode. Tackling chores as a household. Recognize that any “system” is only as good as the person managing it. (Consider giving that responsibility to someone who is capable of implementing, training and following up with the chores) Everything we face is either […] Read more…

045 Recovering From Grief And PTSD from Chronic Lyme Disease

Talking Points: Managing the anxiety that comes from PTSD. Changing and growing on the emotional side of things. Understanding that everything (tasks, conversations, events) is much harder than it once was. Shifting my verbiage from negative self-talk into positive self-talk and carrying it with me throughout the day. Flooding-Be aware of how it affects you. Game changer-Celebrating small wins, […] Read more…

The Lyme Games

“When I consider myself competing in the Hunger Games I think of myself as weak and broken, but when I see myself fighting at the Lyme Games (and Company) I see a strength I never would have known existed if I never got pushed into the game.” -Megan Participation is forced. Anyone could be expected […] Read more…

Juggling Family and Finances With Chronic Lyme

When do you need to act on behalf of your spouse? In order to become a caregiver-you end up dropping something else, homes, jobs, etc. What I would have done differently. Acknowledging that things are not getting better, and start learning new skills: laundry, grocery shopping, meal planning, family finance. You can’t “work” your way […] Read more…

THE LYME GAMES

Participation is forced. Anyone could be expected to participate at any time. Surviving will cost you. You can up your rate of survival by swallowing mounds of supplements. But it’ll cost you. Experimenting on your own body is completely normal. You can make friends along the way, but neither of you can really help each […] Read more…

-Shame and Illness-

-Shame and Illness- I was watching a movie where a young girl fought off an attacker in a dark parking lot. She received several bruises but a bystander stopped in, preventing anything else from happening. This young girl, bruised and traumatized did not want to report the incident to the police. She understandably wanted the […] Read more…

041 Living Beyond Brain Fog

There is so much evidence on the destructive nature of concussions. The movie “Concussion” shows the long-term effects of living with brain damage. But did you know that Lyme-brain or brain-fog is real and bears similarities to concussions? It is true! This episode was born out of the often tearful conversation between two brain damaged individuals. Both who were […] Read more…

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