I am a 41 year old married, mother of 2. I discovered I had LYME disease about 3 years ago when I crashed against a wall HARD. I apparently had the slow workings of Lyme for over a decade because I gave everything I had to both my kids in the womb. They had been […] Read more…
Posts Tagged ‘fatigue’
Struggling for Normalcy …
I sat last night at an end of the year banquet for Dereck and the R4 Robotics team. They have achieved so much in so many areas. They had a very moving slide show that encompassed the last four years of the team. Even though Dereck is younger than many of the core team members. […] Read more…
Lyme and Children
September 15, 2014 (The following article was written for Lymedisease.org) The CDC says that Lyme disease is most common among boys aged 5-19. This age group is affected at three times the average rate of all other age groups. Around 25% of all reported cases are children. Children with Lyme disease have special issues. Since […] Read more…
8 months post-treatment: The cost of your “life” education
May 18, 2014 “If you think education is expensive, try ignorance”-Dereck Bok I was doing some writing for my upcoming blog post for the NM Fiesta project (my 15 hour a week gig, working with post adoptive families in Rio Rancho). I was using my Microsoft office dictionary to look up the synonyms for the […] Read more…
8 months post-treatment: Independent Living
April 22, 2014 It is amazing what you can get done when you aren’t dying. I can accomplish more by 9am, than I was able to do in an entire day. And I functioned that way for years and years, every step and motion cost me precious energy that I did not have. Now as […] Read more…
4 Months Post-treatment
January 3, 2014 Just recently saw my Facebook “year in review” for 2013. Ugh, it was painful to watch. All the photos of my kids were from other people. One, I couldn’t hold a camera. Two, I couldn’t watch my own kids for most of the year. 2014 is already shaping up much better. I […] Read more…
Being Home…Day one
September 9, 2013 As I write, I sit at home in my bed, my Mom got the kids off to school this morning, and I’m struggling to wrap my head around being home. My health protocol is 2 weeks of strict bed rest, followed by another 6 weeks of constant and mandatory rest with 15 […] Read more…
Coming HOME after 8 weeks of Lyme Treatment at Shea Medical
September 8, 2013 I have hesitated to write since being home. I have been on such an emotional roller coaster over the last 6 months, I wanted my words to be wise and felt like I was struggling with so much grief it was hard to analyze my words. However, during this short journey I […] Read more…
When the PAIN ends~1 month Post-treatment at Shea Medical
September 6, 2013 How hopeless, the naked wood of a fruit tree would look to us in February, if we had never seen the marvel of springtime. People continue to ask me how I’m feeling. It is a complex question with many facets. Physically I continue to make improvements. I woke up yesterday and […] Read more…
Thoughts on coming home…
September 5, 2013 Coming home means facing my frailties. While it is true that I have been living with illness and it’s frailties for many years, in my head it was always temporary. When I get over this car accident, then I’ll be able to pursue this and that. I was in hindsight a […] Read more…